Open Humans is a program of the 501(c)(3) nonprofit Open Humans Foundation.
The organization is based in the United States and is led by a nine-member Board of Directors, which includes seats elected by the Open Humans community.
"Open Humans is a platform that allows you to upload, connect, and privately store your personal data – such as genetic, activity, or social media data. Once you've added data, you can choose to donate it: you might choose to share some publicly, and you can join and contribute to diverse research projects. Thus, we turn the traditional research pipeline on its head: you are at the center and in control of when you share your data. We want to empower you to explore your data – for example, enabling you to analyze your genome or your Twitter data. For researchers and citizen scientists, Open Humans offers a toolbox to easily create new projects which can efficiently ask an engaged audience of participants to join and contribute. or join research projects. So far our community has contributed 19 different tools to enable data import from external sources at the touch of a button, as well as numerous projects that help members explore data and invite them to contribute to research. Thanks to this growing community, new data sources, visualizations, and research projects are continuously becoming available." - From the About Page of the Official Website
- Mad Price Ball, Executive Director
- Bastian Greshake Tzovaras, Director of Research
- Mike Escalante, Web Development / Operations